Tuesday, August 30, 2011

Don't cry...

I'm glad I didn't waste too many tears just then, the guy who called me called me back with GREAT news! My medication will be covered for this month and a few after that.

Medicaid would pay 20% of my medicine while Medicare covered the 80%, but Medicaid is not doing that anymore. I would have to come up with that and that would have been about $500 a month (more than my car note). He checked my account and saw that the Medicaid is paying for my Medicare premiums. One of my medications were in the $200s but the co-pay now comes down to $2.50!

I'm not out of the clear yet, this buys me some time but I have to do some research on different coverage out there that would be right for me and my case.

I have suck a headache right now, but I'm on steady ground and doesn't change the fact that after discussing with my friend (Domanie) that I need to re-connect and re-focus on who is supposed to be in that #1 position and that is God, He has done way too much for me to leave Him behind.

The End of the Road...

The phone call came in, the one I wasn't even thinking about yet. Your funds are coming to an end. What does that mean to you? It means that I will no longer have money to cover my expensive drugs to help me keep tricking my immune system into thinking the kidney in my body is really mine and belongs to me.

My normal first reaction is to cry, sob, wail, whatever you want to call it, THEN tell myself God will make a way. I really can't afford to do that this time, even though the tears will come because of the uncertainty, I will have to make some phone calls.

Getting insurance is not that easy when you have a pre-existing condition, they are quick to deny you because they see you as dollar signs and honey, you have too many dollar signs attached to your sickness.

I have to start taking action quick because I don't want to lose my kidney and go back to doing dialysis. I just want to tell you guys that I am really scared right now....

I really don't want to go back to doing this again.....
.

Saturday, August 20, 2011

What have I done?

In my previous post I went on to tell you about my trip to NY and how my parents were not too happy about it. Well I've been back now for 10 days now and they haven't spoken to me. I don't know why I assumed they would have talked to me like nothing ever happened. I just didn't realize the extent of the damage I have created.

The night I came back, I arrived before my parents did, I was already tense about going home and facing them but this just added to it. I was in my room when they came home, they arrived after 10pm, separately. I asked my younger sister for advice, "should I knock on their door or just open it to say hello?" We came to the conclusion that if I knock I was guaranteed an answer, right? Well I knocked and got no answer, my sister was laughing in the living room, usually when you knock you would have heard "yes?" but that didn't happen. I opened the door and walked in, said "hi" to them, they response was very very dry and low. I stepped out backwards out of the room. Everyday since then I've said "good morning, hi, hello" I still get the same dry returns.

I took the opportunity to stay at my sister's place while she is away in NY for a few days, I know my parents won't miss me since I already was gone for two whole weeks. I got a weave put in yesterday for the first time and I knew this would get their attention! Did I do it for them, hecks no! It was for a friend and a photo shoot to promote her sister's business. It was a short weave, but when I got home I got the dry "hellos" my mother looked at me as if she didn't know and my father never looked up to see me, not even sure if he saw my head at all.

Typing this right now brings tears to my eyes, I feel like I let them down so much and they have reached the point of giving up, oh wait not "giving" because they did give up and don't know what to do with me anymore.

In the end I realized I dropped my family, who is always around me for my boyfriend who lives miles away from me. What a sacrifice, huh?

My friends say give it time they'll come around, but how long?

Tuesday, August 2, 2011

Keep it in the closet...

This trip that I am currently on in NY has brought me so much happiness and distress at the same time.

Point blank, yes, I came here to see my boyfriend and up to today I have seen him everyday except Sunday (no religious connection for this, I was just too tired). We spent his birthday together (8/1/11) and had a great day. Every time I think about him or see him I just smile so much.

The distress comes from what I left behind, my family. I think I disappointed all of them so much, my 2 sisters along with mother and father. I already told you guys what happened when I mentioned NY to my mother and how she went off and sent my father after me. Well, I never gave them the full details of my trip, what day I was leaving, what time, or when I was even coming back. I figured why go through all of that again so I just kept it to myself while leaving them in the dark.

The night I left, I said bye to my mother and she asked where I was going, I replied to my sister's place because I was getting a ride to the airport in the morning. She looked at me with disdain as if her face said "you're going to get what's coming for you." Went to my father and told him goodbye and asked where I was going, I told him and he shrugged his shoulders, I turned away with my head hung low.

Since I've been here they have not accepted my house calls so I gave up. I spoke to my younger sister about it and I feel as though she has taken their side, actually there are no sides to take in the matter, I went about all of this wrong. So how can I possibly expect anyone to side with me when I'm in the wrong... I can't.

How did I disappoint my older sister? By when I asked her to send me my medication. As a person who takes medication you need to be sure you have all your meds for traveling. By the time I called in my refills I knew it was too late but hoped it would make it the day before I left.

I see I am the type of person who does not think things through and just acts, I don't think of the the after I think about right now, I don't think about others, I only think about myself.

Keep it in the closet...why is it that your friends will know all the minute details but your family is the last to know? The people who live with you, know your ways and have supported and put up with you for years are now treated as strangers.

No matter how old I get I still need to grow up.