Monday, April 25, 2011

Do you remember the time? (Actually I don't)

Today my younger sister was telling me that her professor called her today, to inform her that they would not be there and asked her to take roll and tell the other students what to do for today. Naturally, I laughed at her, you know the teacher's pet always gets looked down on.

I told my father of the occurrence and he said how that happened to me twice!! To my surprise I was in shock and sent a text to my sister and let her know. She felt much better after this, but I didn't. Not because I was considered a teacher's pet but because of how poor my memory is.

After being diagnosed with Lupus I think my memory got bad. They do talk about a "Lupus fog." You can find more info about that here: http://www.lupus.org/webmodules/webarticlesnet/templates/new_learnliving.aspx?articleid=2257&zoneid=527. After my father told me that, I went back to him and told him that he is blessed with a great memory. It makes me sad at times when I can't remember things that I experienced myself, it's quite maddening actually.

I thought maybe it was me and I had selective memory. I didn't want to give Lupus any credit over me, but why would I select things that I encountered to exclude from my own memory, whether a joyous or unhappy moment?

I am a young person and when someone starts what is supposed to be a funny story with "do you remember when....." I smile and from there I have 2 choices to make. Lie or just say "No, I don't actually," either way the story will be re-told.

I feel like I should document everyday of my life just so I can remember it happened. I wonder how will I be in my old age? Only God knows!


Friday, April 22, 2011

What you need to know about me...

  • I was born in Brooklyn, NY (whoop, whoop!!! lol)
  • I am Haitian-American
  • Diagnosed with Lupus when I was 14; December 1998 (Merry Christmas to ya!)
  • Medication for the Lupus messed up my hips, got both of them replaced, one in 2000 the other 2001.
  • My kidneys took the hit of the lupus and had to do dialysis
  • Was on dialysis for 5 years before I got my kidney transplant in April 2008
  • Now dealing with this virus that's in my kidney =/ {BK virus}

A day in the hospital

Hi reader,

My name is Samanta. I felt like blogging today because I'm not in the happiest mood right now. I am in the hospital getting an infusion for a virus that I have. I know right, YAY!!!!! -_- Even though this is an outpatient procedure, I still feel some type of way. Maybe that is due to the fact that I am here alone, while my sister told me she's going to sleep in the car....thanks! I feel like crying because I've been in and out of hospitals since I was 14 and I am now 27. Don't get me wronged, I am truly blessed because when I was younger I was in there a lot! No tears.

I'll tell you about this infusion I'm getting today, it's for this virus I have called the BK Virus. Ask me what it is and I wouldn't be able to tell you. I know you're thinking I should ask but I'm at a point of not caring anymore. I'm getting an anti-viral solution through IV, which I just found out today while here that it's going to take 3 hours (an hour for hydration, then medicine, and hydration), so just imagine the kind of face you would make not knowing what to expect. I mean I didn't have any plans for today but still, give people the full details so they can plan accordingly, smh. I feel bad because my sister is here, we're pretty much in Atlanta an hour away from where we live. I told her she could go if she had things to do, she went to the bookstore.

I had asked her to take me because I let my younger sister use my car and I didn't know how this treatment was going to make me feel, after today I'll have a better understanding of what to expect. Oh yes, I have 2 more treatments after this, two weeks apart from each other. I guess that's it for now, thought I had more to say. Any questions for me, feel free to ask!

Me with the IV in my arm
God bless!